Response There are numerous questions that I pose in the PPT. Questions about the impact of a disability, marriage, parenting while having a disability, a

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 There are numerous questions that I pose in the PPT. Questions about the impact of a disability,  marriage, parenting while having a disability, and more.  Did this week videos help answer some of those questions for you?  What questions do you still have? 

Family and Disability

COUN 2020

Major Components of Family Unit

Affect

How the family deals with feelings – moods, acknowledgement of feelings

Communication

How the family talks and communicates ideas and concepts – clearness, respectfulness, and patterns of interactions with others)

Structure/Organization

Hierarchy

Boundaries

Flexibility

2

Age of Onset Plays Critical Role

Infancy

Toddler

Youth

Young Adult

Adult

Old Age

3

Disability disrupts the homeostatic balance of the family unit

Changes in

Schedules

Duties

Plans

Roles

Subjective Burden

Powerful grieving process as well as intense emotions. The personal suffering experienced by family members in response to their relative’s illness.

4

With or without support, the family must progress through essentially the same stages of adjustment as the person who is disabled.

SHOCK, PAIN, ANXIETY, LIFE HAS ALTERED, MUST DEAL WITH PEOPLE’S PERCEPTION, THEIR REACTION, GUILT, RELATIONSHIPS CHANGE

5

The Whole Family

Vash and Crewe contend that “ although only one member of the family “owns” the disability, all family members are affected and, to some extent, handicapped by it”

Characteristics of Healthy Family

Commitment

Togetherness

Appreciation and admiration of an individual

Communication

Spiritual well-being

Coping with crisis/stress

What else?

7

Emotional stability is the prime requisite for coping with any catastrophic change, in order to neutralize adverse reactions and facilitate the adjustment process. A loving nature, the ability to accept “what is” and proceed from there, and belief in one’s own power to influence the future are crucial aspects of the emotional armamentarium needed

The ability to grasp the medical and other facts of the situation, to foresee and prepare for problems that may arise in the future, and to creatively devise and implement solutions to them, plus a working knowledge of the outer resources that exist in the community are exceedingly important intellectual resources to draw upon, both in times of crisis and later when the crisis stage has passed

Such as assertiveness, persuasiveness, diplomacy, and

emotional supportiveness

Enmeshment

Disengagement

Adaptaion

Family and Disability

Guilt

Coalition/subsystem

Boundaries

Resources

E

8

Marriage

Marriage’s established after disablement have a statistically higher high chances of non-divorce than marriages that occur before disabling event happens.

What could explain this?

9

Child Rearing

Should individuals with disabilities attempt to raise children?

How can discipline be maintained?

Can a disabled parent serve as an appropriate role model?

Parents with intellectual disabilities

There is a stigma against individuals with a disability raising a child. The stigma raises in part from the concept of parentification. Parentification is when a child takes on inappropriate care giving duties

Parentification may happen, but it’s usually the result of the lack of resources and support

“Have ’em, love ’em, and leave ’em alone!”

Buck and Hohmann’s findings (1983) that the children of reasonably well-adjusted disabled parents differ from children of nondisabled parents mainly in that they are more affectionate and appreciative toward their parents and more responsible or mature than the typical child of the same age

10

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